Year: 2015
Module: Data_Sharing_and Privacy
Variable: CONSENT1

Some people think that you should not be allowed to link data in these ways unless you have the consent of each individual patient - even if this means that the research might have to be abandoned because of difficulties contacting patients. Other people think that consent is not necessary in cases like these. Which of these three statements comes closest to your own view?

 
%
It isn't necessary to ask for consent for linking data in these ways as long as there is a guarantee that nobody will be identified30
You should always have try to get consent when you can, but if the difficulties are too great, important research should not have to be abandoned for this reason34
You should always have to ask for each individual patient's consent before linking their data with anything else and you will have to abandon the research if there are difficulties contacting people31
Don't know5



 

Go to results for men and women, people of different religions, and people of different ages.
Go to technical notes

 


 

Results for men and women

 
%
 MaleFemale
It isn't necessary to ask for consent for linking data in these ways as long as there is a guarantee that nobody will be identified 28 31
You should always have try to get consent when you can, but if the difficulties are too great, important research should not have to be abandoned for this reason 33 35
You should always have to ask for each individual patient's consent before linking their data with anything else and you will have to abandon the research if there are difficulties contacting people 34 29
Don't know 5 5



 


 

Results for people of different ages

 
%
 18-2425-3435-4445-5455-6465+
It isn't necessary to ask for consent for linking data in these ways as long as there is a guarantee that nobody will be identified 27 30 30 30 27 32
You should always have try to get consent when you can, but if the difficulties are too great, important research should not have to be abandoned for this reason 29 33 38 38 38 31
You should always have to ask for each individual patient's consent before linking their data with anything else and you will have to abandon the research if there are difficulties contacting people 39 29 25 30 32 32
Don't know 5 9 6 2 3 5



 


 

Results for people of different religions

 
%
 CatholicProtestantNo religion
It isn't necessary to ask for consent for linking data in these ways as long as there is a guarantee that nobody will be identified 25 33 36
You should always have try to get consent when you can, but if the difficulties are too great, important research should not have to be abandoned for this reason 36 34 34
You should always have to ask for each individual patient's consent before linking their data with anything else and you will have to abandon the research if there are difficulties contacting people 34 31 24
Don't know 5 3 6



 


 

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